August 5
Today we met with the oncologists at Johns Hopkins to find out what Seth's next step will be. Seth will need to get a spinal tap to see if there are any cells in his brain or spine that would form tumors. He will then have a port put in to his artery so they will be able to give chemo without all the injections. Then he starts radiation. Radiation will be 6 weeks long and we will have to travel to Baltimore every day Monday through Friday. Seth then has 4 weeks off till he starts chemo treatments. There will be 9 chemo treatments each treatment 3-4 weeks apart. He will have to stay in the hospital for 2-4 days during each chemo treatment. We were told by the oncologist that after all of the radiation and chemo he expects Seth to be cured. Those are sweet words to our ears! Seth found out today that he will probably lose his hair:( But I thought wouldn't it be cool if God let him keep that. So I will be praying about that and would love if you join me. We posted pictures of Seth and his doctors. One is Seth with Dr Jallo his surgeon and the other is Seth with Dr. Cohan and Dr. Baxbaum the oncologists. Please pray for our family during this time. God has been so faithful. We dealt with a lot of emotions during the past 2 1/2 weeks but each time we feel like this is too much handle God just wraps his arms around us and gives us the strength to keep going:)
Many people have been asking if the tumor that was removed from Seth's brain " is it cancer?". The answer is yes it was cancer. The good news is the type of medulloblastoma it was, and with the correct treatment the cure rate is very high.
posted by Seth Good @ 8:49 PM
9 Comments:
Seth,
You look so cool. Every day you look more and more like your old self.
Sounds like you're in for a long adventure. Maybe you should write a book about it. You always were good at writing stories.
We love you MUCHO and know God does too.
MawMaw and PawPaw
Hi Seth and family, It's David from Forbes. Thanks again for letting me tag along today at Dr. Cohen's visit.
I'm at dwhelan@forbes.com--meant to give you a card.
Love the blog--thanks for pointing it out. get well soon!
David
Hi Good Family,
We were away for several days and one of the first things we did when we got home was to check your blog and see how you are doing.God is on your side and remember there is nothing you can go through in a day that God can`t help you through.I am glad you got out and enjoyed a baseball game.Fresh air is always a great thing to enjoy.We are still praying for all of you and will continue praying.You are special!!!!!
Blessings,The Shenk Family
P.S. Keirstyn says hi and she misses all of you.
Hi Guys,
You are never far from our thoughts and prayers. Can't imagine all that you are going through. I do know that God will be with you. I believe in Joshua 1:5-6 for you.
"No one will be able to stand up against you all the days of your life. As I was with Moses, so I will be with you; I will never leave you nor forsake you.
6 "Be strong and courageous, because you will lead these people to inherit the land I swore to their forefathers to give them. 7 Be strong and very courageous."
Seth, Be strong and Very courageous God is with you!!!
Blessings,
Rob, Beth, & boys
Hi from Ontario, Canada. We at Livingstones have been praying for you.
Our Oliver had Cancer as a baby and yes the chemo will cause loss of hair, but it all grows back. We know that it will feel like a long journey for the next few months so we will be praying for you.
As Mom get as much rest between hospital visits. God is good and will give you the strength you need as you need it.
Seth get a real cool hat to wear for the next few months. This time next year you will never know you lost your hair for a few months.
Take care, God bless you all.
Hi guys,this is Stacey and Derek,parents of Dj just wanted to stop by to say we are still praying for Seth and to let you know that Dj just got released today,we still have a couple of weeks of therpy because his left side is very weak and he can not walk on his own yet,but he is doing very well.We still do not know about his final biopsy result but we will let you know how everything is going.please let us know if we can do anything to help.thank you again for all the prayers,we will be thinking of you guys
Hi Seth and family,
Our prayers are with you and your
family.
You know, I agree that God cares about the little things. Greg and I will definitely be praying that Seth can keep his hair. As one in the medical profession all signs point to hair loss, however, we also work for an even bigger physician with more power and authority than anyone here on this earth. God can do great things, and again he cares about the small stuff (and not so small stuff to some such as Seth desiring to keep his hair). We believe in miracles and we will pray for one.
Blessings of peace, hope, and joy to you all. Love Steph and Greg.
Hey Seth,
If all is going as planned, I guess you're camping right now. We will continue to pray for all of you. Take one day at a time. Our God is incredible and he will walk with you. Try not to worry ahead of time - God gives us the strength we need exactly when we need it. You'll make it!
Danielle for the Kreiders
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